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        <title type="main" level="a">Quality of life in Health Care: focus on patients</title>
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          <persName n="1" ref="https://orcid.org/0000-0003-0427-2487" type="ORCID">
            <forename>Laura</forename>
            <surname>Benedan</surname>
            <placeName type="affiliation">University of Milano-Bicocca, Italy</placeName>
          </persName>
          <persName n="2">
            <forename>Angela</forename>
            <surname>Digrandi</surname>
            <placeName type="affiliation">CNR, Italy</placeName>
          </persName>
          <persName n="3" ref="https://orcid.org/0000-0002-8848-8893" type="ORCID">
            <forename>Paolo</forename>
            <surname>Mariani</surname>
            <placeName type="affiliation">University of Milano-Bicocca, Italy</placeName>
          </persName>
          <persName n="4">
            <forename>Cinzia</forename>
            <surname>Pilo</surname>
            <placeName type="affiliation">REB Onlus Foundation, Italy</placeName>
          </persName>
          <persName n="5" ref="https://orcid.org/0000-0002-8112-5627" type="ORCID">
            <forename>Mariangela</forename>
            <surname>Zenga</surname>
            <placeName type="affiliation">University of Milano-Bicocca, Italy</placeName>
          </persName>
        </author>
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          <resp>This is a section of <title>ASA 2022 Data-Driven Decision Making</title>(DOI: <idno type="DOI">10.36253/979-12-215-0106-3</idno>) by </resp>
          <name>Enrico di Bella, Luigi Fabbris, Corrado Lagazio</name>
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      <publicationStmt>
        <publisher>Firenze University Press</publisher>
        <pubPlace>Firenze</pubPlace>
        <date when="2023">2023</date>
        <idno type="DOI">https://doi.org/10.36253/979-12-215-0106-3.23</idno>
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          <p>Available for academic research purposes</p>
          <p>Open Access</p>
          <p>Copyright Author(s)</p>
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            <p>Content licence CC BY 4.0</p>
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      <abstract xml:lang="en">
        <p>In this work, we show a narrative review conserning instruments to measure the quality of Life in Health Care from a patients point of view. In particular, we pay attention on the construction of questionnaire and on the choice of the areas/settings (physical, emotional, social, functional, economical,...).</p>
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            <item>Quality of Life</item>
            <item>Questionnaire</item>
            <item>Patients</item>
            <item>Health care</item>
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      <p>It is available online at https://doi.org/10.36253/979-12-215-0106-3.23<ref target="https://doi.org/10.36253/979-12-215-0106-3.23" /></p>
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          <head>References</head>
          <bibl n="111950">Asadi-Lari, M., Tamburini, M., Gray, D. (2004). Patients&amp;#39; needs, satisfaction, and health related quality of life: towards a comprehensive model. Health Qual Life Outcomes, 2, pp. 32.</bibl>
          <bibl n="111951">Bartolini, B., Bertoldi, S., Benedan, L., Galeone, C., Mariani, P., Sofia, F., Zenga, M. (2021). Development of an innovative methodology to define patient-designed Quality of Life: a new version of a well-known concept in healthcare. In Bruno Bertaccini,</bibl>
          <bibl n="111952">Benedan, L., Hachem, M. El, Galeone, C., Mariani, P., Pilo, C., Tadini, G. (2022). Assessing the Quality of Life of patients with Epidermolysis Bullosa (EB): Development of a patient-centered questionnaire. In Book of short papers - 10th International Con</bibl>
          <bibl n="111953">Boulkedid, R., Abdoul, H., Loustau, M., Sibony, O., Alberti, C. (2011). Using and reporting the Delphi method for selecting healthcare quality indicators: a systematic review. PLoS One, 6(6), e20476.</bibl>
          <bibl n="111954">Centers for Disease Control and Prevention (2000). Measuring healthy days: Population assessment of health-related quality of life. Centers for Disease Control and Prevention, Atlanta, Georgia.</bibl>
          <bibl n="111955">Pacinelli, A., (2008). Metodi per la Ricerca Sociale Partecipata, Franco Angeli, Milano.</bibl>
          <bibl n="111956">Patrick, D.L., Deyo, R.A. (1989). Generic and disease-specific measures in assessing health status and quality of life. Med Care, 27(3 Suppl), pp. S217-232.</bibl>
          <bibl n="111957">Rabin, R., de Charro, F. (2001). EQ-5D: a measure of health status from the EuroQol Group. Annals of Medicine, 33(5), pp. 337—342.</bibl>
          <bibl n="111958">Selim, A.J., Rogers, W., Fleishman, J.A., Qian, S.X., Fincke, B.G., Rothendler, J.A., Kazis, L.E. (2009). Updated U.S. population standard for the Veterans RAND 12-item Health Survey (VR-12). Qual Life Res., 18(1), pp 43-52.</bibl>
          <bibl n="111959">Trevelyan, E. G., Robinson, N. (2015). Delphi methodology in health research: How to do it? European Journal of Integrative Medicine, 7(4), pp. 423–428.</bibl>
          <bibl n="111960">Ware, J. E., Jr., Gandek, B., Guyer, R., Deng, N. (2016). Standardizing disease-specific quality of life measures across multiple chronic conditions: development and initial evaluation of the QOL Disease Impact Scale (QDIS&amp;#174;). Health Quality Life Outcomes,</bibl>
          <bibl n="111961">Warner, K., See, W., Haerry, D., Klingmann, I., Hunter, A., May, M. (2018). EUPATI Guidance for Patient Involvement in Medicines Research and Development (R&amp;amp;D); Guidance for Pharmaceutical Industry-Led Medicines R&amp;amp;D. Front Med (Lausanne), 5, pp. 270.</bibl>
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